Resources for ME & CFS
What is Myalgic Encephalomyelitis (ME)
Myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) are complex conditions affecting energy metabolism and impacting every system in the body.
- They share many symptoms, such as unrefreshing sleep, problems thinking clearly, and bodily pain.
- ME is generally considered to be a more severe form of the disease with severe energy impairment, muscle weakness, and neurological symptoms.
- Shockingly, a quarter of ME patients are confined to their homes or beds due to its debilitating nature. These are the forgotten 25%.
- Both ME and CFS are most often triggered by a viral infection, underscoring the significant role of the immune system.
- The emergence of ME-like symptoms in millions of individuals post-Sars CoV-2 infection, known as long COVID, has catalyzed medical research efforts toward a deeper understanding of ME.Â
 - Post-exertional malaise (PEM) is the most distinguishing feature of both ME and CFS.
- PEMÂ refers to the prolonged worsening of multiple symptoms with minimal physical, mental, or emotional exertion.
- The worsening lasts days to weeks and is not relieved by rest or sleep.
- The onset of PEM can be delayed by hours to days, making it difficult to notice the connection between activity and symptoms (e.g., unrefreshing sleep, troubling thinking clearly).
As someone who knows these conditions, I am dedicated to providing practical and compassionate education, resources, and hope to those affected by ME, CFS, and PEM.
Online Courses
Self-Study Course
Pathways to Improvement
Learn to take charge of your health to help you feel and live better with ME, CFS. Self-management works!
More DetailsLive Online Mentorship
Pathways In Action
Learn to individualize and optimize your self-management with the support of a mentor and small group. Ask your questions about ME, CFS.
More DetailsMembership to Live Sessions
Live! with Dr. Stein
Evidence-based presentations and Q&A with Dr. Stein. Credible, science-based, and cutting edge information about how to live longer and healthier.
More DetailsSelf-Study Course
Pathway 3: Sleep
Better sleep means less pain and more comfort. Wake more refreshed and have more energy to enjoy life by learning proven self-management strategies for more effective sleep.
More DetailsWebinars (recordings)
Deep Pacing
Dr. Stein explains DEEP pacing—providing strategies for attending holistically to the mind and body, to stabilize your energy, make your life and health more predictable, and give you more control.Â
More DetailsCauses & Treatment
Dr. Neil Nathan explains how to solve underlying causes of ME, CFS, FM and ES. Learn strategies to recover from mold and infections that make people sensitive and reactive.
More DetailsBooks
Let Your Light Shine Through
In this manual, Dr. Stein shares the strategies she has found to be the most successful for patients in her 35-year medical practice working with ME, CFS, FM, ES, chronic pain, and more recently, long Covid. Readers are guided through a 286-page, 4-month program specific to these conditions. Let Your Light Shine Through is filled with practical, no-to-low-cost management suggestions, tools and resources. Formats available: hardcopy coil-bound and digital download.Â
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More Light
Building upon Let Your Let Shine Through, More Light contains up-to-date, science-based information, clinical approaches, and affordable interventions that you can do on your own. Currently, only individual chapters are available at affordable prices. Choose the subjects tailored specifically to your health needs. Current topics are Self-management, Diagnosis, Biology of Change, Sleep, and Energy and Activity.
More DetailsRecommended Free VideosÂ
Part 1:Â What is ME/CFS?
In this video, Dr. Stein describes ME/CFS. It includes a 5-minute video of the same name from the Bateman Horne Centre (used with permission). Each of the criteria suggested in the 2015 IOM/NAM report is explained. The Bateman Horne video is a cartoon and easily accessible to all viewers.
Part 2:Â Diagnosis
In this recording, Dr. Stein describes the questions a healthcare practitioner could ask a patient to confirm whether they meet the criteria for ME/CFS. She also describes some of the conditions that frequently accompany ME. If you are a patient, consider what your answers are to these questions. Dr. Stein has included audio clips from real patients answering these questions to give a feel of the lived experience of ME/CFS.
Part 3:Â Management
In this recording, Dr. Stein introduces the most helpful management strategies for each of the common symptoms of ME/CFS, those included in the SEID criteria, the Canadian Consensus Criteria, and the conditions that often accompany ME. She includes audio clips from real patients to help give you an idea of what these symptoms are like and how people have improved over time. There is hope.
What Can Help Heal Your Pain?
An interview with Simon Pimenta
Simon lives in the UK and had ME/CFS and fibromyalgia for 8 years. In this video, Simon talks to Dr. Stein on the topic of healing pain using Neuroplasticity and other approaches. Â
Podcast with Dr. Courtney Craig
In this episode, Dr. Courtney Craig and I discuss our shared experience of how a diagnosis of ME/CFS led us, professionally, to help others manage the condition. I describe how self-management strategies can impact biology and therefore improve patients' lives.
Spoonie Radio is a Chronic Fatigue Syndrome & Fibromyalgia Podcast highlighting effective treatment strategies as well as insight from clinicians, researchers, and advocates. This show is brought to you by Dr. Courtney Craig, recovered CFS patient and clinician.