Free Videos About Complex Chronic Diseases
ME, CFS, FM, Sensitivities, Chronic Pain and Long COVID
2021
Knowledge gives you the power to heal.
Blog from ANZMES (Association of New Zealand Myalgic Encephalopathy Societies Inc.)
ANZMES is the national support organization for ME sufferers and their carers in New Zealand.
https://anzmes.org.nz/
Health Rising’s What’s Up, Doc? Series Begins With Dr. Eleanor Stein—an interview on May 24, 2021
What’s Up Doc? is a series hosted by Cort Johnson and dedicated to exploring what’s catching the eyes and ears of ME/CFS/FM and allied disorders doctors.
See all blogs about Dr. Stein on Health Rising
https://www.healthrising.org/blog/2020/10/05/pathways-improvement-online-chronic-fatigue-fibromyalgia-ei-eleanor-stein/
My Podcast Interview With Dr. Courtney Craig — May 4, 2021
In this 48-minute podcast, we discuss a wide range of topics. I begin by telling the story of what I have learned in my 32-year history with ME/CFS, FM and ES. I answer some hard questions from Dr. Craig, including the apparent conflict between psychiatry and ME/CFS and how self-management can possibly help in these serious biomedical conditions.
Self-management does not cure ME/CFS, FM or ES. But what we think, feel, and do impacts biology. Neuroplasticity, in particular, has caught my attention. It is a living connection between the mind and the body. It allows us to plan changes to our brains and bodies by changing behavior - amazing.
We are all awaiting transformative biological interventions for ME/CFS, FM and ES. However, even in conditions for which there are powerful biological treatments, self-management remains important. I designed my online course to fill the need for accurate disease-specific self-management strategies.
I hope you enjoy the podcast. And a big thank you to Dr. Craig for offering the platform of hope.
Click on the following link to hear my podcast conversation with Dr. Courtney Craig:
https://www.drcourtneycraig.com/blog/2021/5/4/spoonie-radio-ep-19-dr-eleanor-stein
About Dr. Courtney Craig
Dr. Craig received her clinical training at Palmer College of Chiropractic, Florida. She also completed undergraduate exercise science studies at the College of William and Mary. She graduated with honors from the University of Bridgeport’s Human Nutrition Institute Master's program. Dr. Craig studied at the Technical University of Munich, Germany, with a focus on nutrition and biomedical research. She was a visiting scientist at Cornell’s Center for Enervating Neuroimmune Disease.
Dr. Stein's Interview on the CBC Alberta Provincial Late News on April 18, 2021
Long COVID
● 10 to 30% of people who contract COVID 19 don't recover fully as expected. These lingering symptoms are referred to as long-haul, post-COVID, or long COVID.
● The symptoms of long COVID include severe fatigue, post-exertional malaise, unrefreshing sleep, brain fog and unstable blood pressure—very similar to symptoms of ME/CFS.
● The number one take-home message for those with long COVID is to PACE. This means living within your energy bank account. Try to save a bit of energy every day so the body can use it to heal.
● We hope this sensible self-management will help people with long COVID recover.
Part 1: What is ME/CFS?
In this video, I describe ME/CFS. It includes a 5-minute video of the same name from the Bateman Horne Centre (used with permission). Each of the criteria suggested in the 2015 IOM/NAM report is explained. The Bateman Horne video is a cartoon and easily accessible to all viewers.
Pour regarder cette vidéo avec des sous-titres en Français. Veuillez cliquer ce lien pour la traduction:
Première Partie: Qu'est-ce que l'EM/SFCPart 2: Diagnosis
In this recording, I describe the questions a healthcare practitioner could ask a patient to confirm whether they meet the criteria for ME/CFS. I also describe some of the conditions that frequently accompany ME. If you are a patient, consider what your answers are to these questions. I have included audio clips from real patients answering these questions to give a feel of the lived experience of ME/CFS.
Pour regarder cette vidéo avec des sous-titres en Français. Veuillez cliquer ce lien pour la traduction:
Deuxième Partie: Le diagnostic de l'EM/SFCPart 3: Management
In this recording, I introduce the most helpful management strategies for each of the common symptoms of ME/CFS, those included in the SEID criteria, the Canadian Consensus Criteria, and the conditions that often accompany ME. I include audio clips from real patients to help give you an idea of what these symptoms are like and how people have improved over time. There is hope.
Pour regarder cette vidéo avec des sous-titres en Français. Veuillez cliquer ce lien pour la traduction:
Troisième Partie: Gestion d'EM/SFCMore Free Videos
