Clinical Practice Guidelines for ME/CFS

This CPG was drafted by an expert committee of Towards Optimal Practice (TOP).  TOP is a collaboration of the College of Physicians and Surgeons of Alberta and the Alberta Medical Association.  Toward Optimized Practice (TOP) helps Alberta physicians and the teams with whom they work implement evidence-based practices to enhance the care of their patients http://www.topalbertadoctors.org/home/  

I served as the content expert on the committee.  We also had one scientist/researcher, one patient advocate, one psychologist and 3 family physicians on the committee.  All the committee members have extensive knowledge of and experience with individuals with ME/CFS.  We had access to a professional librarian to access all of the literature needed and a professional guidelines facilitator to draft the guidelines. It was a positive experience with everyone agreeing on the importance of the task and having an understanding of the unmet needs of individuals with ME/CFS.  I am very proud of the guidelines.

My hope is that these guidelines will be promoted and used across jurisdictions in Canada and abroad. All family physicians in Alberta were sent an email about these guidelines. Please discuss them with your doctor.

“Identification and symptom management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)

TOP’s new Clinical Practice Guideline (CPG) responds to the need for greater awareness that Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) is a complex, chronic, debilitating physical condition that can be identified and successfully managed in the primary care setting.

The CPG aims to equip clinicians with the necessary knowledge and tools to identify and provide symptom management while empowering the patient by acknowledging the legitimacy of the condition and respecting the patient’s lived experience.”

To view both the CPG and summary document click here.

To view all TOP CPGs and/or subscribe for updates click here.


Registration Open for May 11th International Awareness Day Webinar

2016 International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity
Webinar: Wednesday May 11th  6:30 – 8:30 pm Mountain Daylight Time
Dr. Michael Moskowitz MD MPH – Featured in “The Brain’s Way of Healing” by Dr. Norman Doidge
Neuroplastic Transformation: Using Neuroplasticity to Cure Persistent Pain

Event Flyer –  Please email or post  2016 IAD Webinar Notice (88 downloads)

As it becomes persistent, pain changes from a symptom to a disease.  This change is caused by changes in the pain processing centers in the brain. The changes in the brain cause changes in the rest of the body leading to a vicious circle.  Since the disease of pain is a neuroplastic process in the brain and not due to tissue injury, it is reversible.  Attend this webinar and learn how.

Dr. Moskowitz is Board Certified in both Psychiatry and Pain Medicine. He served as a member of the Examination Council for the American Board of Pain Medicine from 2006-2010.  He has been an Assistant Clinical Professor for the Department of Anesthesiology and Pain Medicine at the University of California, Davis since 2006. Dr. Moskowitz and Dr. Marla Golden have been working together since 2008 to develop a practical therapy which utilizes our brain’s ability to change itself (neuroplasticity) to cure persistent pain. They have published a manual outlining their approach complemented by animations and additional information on their website: www.neuroplastix.com

In this webinar Dr. Moskowitz will explain how and why Neuroplastic Transformation works.
The objective is to return the body and brain to normal function (not to live with pain).

Location: In person at Self Connection Books in Calgary, Canada or online
Dr. Stein and Psychologist Michelle Deslile from the Calgary Chronic Pain Centre will be in house as discussants.

Cost: $20 ($10 for low income)

Registration: http://www.selfconnection.ca/moskowitz


Registration Open for March 19th Diet and Lifestyle Webinar

Registration is now open  –  Webinar: Diet and Activity for optimal health in ME/CFS and FM

Date: Saturday March 19th, 2016

Time: 1:30 – 3:30 pm MST (Mountain Standard Time) 

Speakers:

Rory Hornstein Registered Dietician: Use gut bugs to be healthy and lose weight.
Cory Fagan BPE(Hons), MSc: Use heart rate and exercise test results to plan daily activities.

Location: Join in person at Self Connection Books or On Line

Self Connection Books is at:#125, 4611 Bowness Road NW,  Calgary, Alberta
Phone: 403.284.1486  Toll Free: 866.735.3457

Cost: $15.00/ $7.50 low income (to register as low income please call the office for the coupon code)

For Full Details and to Register go to: http://selfconnection.ca/index.php?option=com_content&view=article&id=1081&Itemid=13

Rory Hornstein Registered Dietician: Using gut bugs to be healthy and lose weight.
Ever wondered how you could have managed to put on weight over the years despite dieting the entire time? Turns out our gut bugs may be creating oversized guts. This session will explain how microbes influence how we eat, what we eat, how we get energy from our food, protect our immune system, help us harvest calories and produce key vitamins and nutrients. Rory Hornstein will explore what we can do to cultivate and enrich the critters in our gut on the path to better health. 

Cory Fagan BPE(Hons), MSc: Recommendations for physical activity and recovery with ME/CFS and FM
Cory and I have been working together for a few years offering the Stephens Protocol 2 day exercise testing. Cory will share what he is finding and how the results in individuals with ME/CFS compare to healthy individuals that he works with at his training facility TCR Sport Lab in Calgary.

  • His topics include: “you are not faking, something is off”. Physiological data to support ME/CFS. 
  • Using heart rate and exercise test results to “train” optimally.
  • Using cryotherapy to improve recovery from activity.

New Manual Prices

Due to increased cost of production the cost for my manual “Let Your Light Shine Through: Strategies for Living with ME/CFS, FM and MCS” has increased slightly.  All prices are in Canadian dollars.  We have a new shipment of both the B&W and Color coil bound manuals.

Download – $20
CD – $22 + shipping
Black and White coil paper manual – $29 + shipping
Color coil paper manual with tabs – $38 + shipping


Three Events Upcoming – Mark Your Calendars

In the February 2016 Newsletter just posted on the Newsletter page, two upcoming events are noted.  A third has just been confirmed.

Saturday March 19, 2016 – Webinar on the topic of diet and activity in ME/CFS and FM with Kinesiologist Cory Fagan and Registered Dietitian Rory Hornstein.  This presentation addresses the challenge of staying fit and maintaining a health weight for people with significant energy limitations. Full registration details will be posted soon – the cost will be $15/$7.50 for low income.  You can participant in person at Self Connection Books in Calgary or by real time audio/video internet connection.  Registration will also give you access to past webinars organized by me on the Self Connection Books website.

Wednesday May 11, 2016 for International Awareness Day – Webinar on the topic of neuroplasticity and its uses in mood, persistent pain and overall wellness.  Registration details will be posted as soon as speakers and topics are confirmed.

June 11/12, 2016 – Weekend Energy Retreat  – This is an exciting new venture capitalizing on the increasing expertise developing in Calgary to assist individuals with ME/CFS and FM.

Small group, practical experience with 4 local experts over 2 days – We will meet for 3 hours/day on each of Saturday and Sunday.  We hope we have found a balance between enough content to attract out of towners who don’t otherwise have the access to this expertise while accommodating our energy limits.  You will leave this with concrete self management steps you can take to improve your health and quality of life.

Cory Fagan – Kinesiologist –  Develop an individualized activity plan.
Gord McMorland – Rehabilitation Chiropractor – Spine 101 – how to sit, stand and walk safely and effectively.
Heather Campbell – Registered Massage therapist and Stott Pilates Instructor – Core strength and Breathing.
Rory Hornstein – Dietitian – Special diet friendly, easy to prepare snacks.

Registration details will be posted when available.

 


Audio Files for Personal Use

Please find for personal use three audiofiles all in MP3 format. These are not professional grade and are not intended for redistribution.

First is a paced breathing exercise taken from Dialectical Behavior Management Skills Training by Dr. Marsha Linehan. To learn more about DBT and Dr. Linehan’s work go to her website.

The goal of paced breathing is to stimulate the parasympathetic nervous system (relaxation response).

This short clip is 1:43.

Next is a progressive muscle relaxation exercise also taken from Dialectical Behavior Management Skills Training by Dr. Marsha Linehan. Progressive muscle relaxation focuses attention and relaxes muscles much better than trying “to relax”.

This exercise is 16:25.

Finally a visualization I adapted from Annie Hopper’s Dynamic Neural Retraining System and Dr. Michael Moskowitz’ “Neuroplastic Transformation”. It is a visualization to use when one is experiencing pain.

To understand more about how using neuroplasticity changes the brain and reduces symptoms go to Dynamic Neural Retraining System or Dr. Moskowitz’s website Neuroplastix.com. Click here to listen to “The Brain Stops Pain”

This guided visualization is 7:52.

 


Comment Posted to the Annals of Internal Medicine

Comment posted to the Annals of Internal Medicine regarding paper “Treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Systematic Review for a National Institutes of Health Pathways to Prevention Workshop”

“First Do No Harm: Graded Exercise Therapy and Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome” Authored by: Lily Chu, Lucinda Bateman, Todd Davenport, Eleanor Stein & Staci Stevens,

To read our response and the original paper go to: http://annals.org/article.aspx?articleid=2322801


2015 International Awareness Day Webinar Recordings NOW Available Online

On May 19th we heard two great talks, one by Lucinda Bateman MD mostly focused on the new SEID criteria and her experience with low dose naltrexone in Fibromyalgia. The other registered dietitian Rory Hornstein RD on the good, bad and ugly among popular diets.

The recordings of both talks plus the powerpoint slides and Q&A are all posted. 

You will also gain access to the 2014 event web recording. 

Scroll down on this page to read more about those speakers.

Here is how you can access the talks. Please read carefully.

If you have not previously purchased access to any talks on the Self Connection 2.0 website for either the 2015 or 2014 International Awareness Day speakers go to: http://selfconnection.kajabi.com/sp/29896-international-awareness-day-for-me-cfs-fm-mcs

Once there you can purchase access for $10.50. When you purchase your access you will be sent an email instructing you how to enter the login website. You will need to set up a password for the site and can then access it as often as you wish.

If you registered and paid for either the 2014 or 2014 events and have previously accessed the online materials you can go directly to the login page and use the email and password you previously used: http://selfconnection.kajabi.com

If you have paid for either this year or last year’s events online, you should have received an email with instructions how to access the website, set up your password etc. Please follow those instructions. 

If you  have any technical problems accessing the material after you have paid or can’t remember your password, please email Mike at Self Connection books at mike.g.finch@gmail.com.


Event Webcast Speakers Announced

Calgary 2015 International Awareness Day  Educational Event Webcast speakers announced.

Please Click here to download a one page poster on the event.

Please Click here to download a detailed information notice.

2015 International Awareness Day for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity

Tuesday May 19th 6:30 – 8:30 pm Mountain Daylight Time

Attend Live in Person at Self Connection Books  (#125, 4611 Bowness Road NW, Calgary) or by Live Webcast

Speakers: Rory Hornstein, RD, BEd, and Lucinda Bateman, MD

Fee $10 – Register online at  http://www.selfconnection.ca/index.php?option=com_content&view=article&id=973 or call Self Connection Books at 403-284-1486 (local) or 866-735-3457 (toll free)

Demystifying Popular Diets – Rory Hornstein RD

Don’t be fooled by weight loss claims and fad diets. The session includes nutrition facts on popular weight loss programs. Ours is an age of unprecedented bounty and convenience–and almost nonstop nutritional advice, subject to change as new research findings come along or scientists change their minds. You try to keep up with the latest and make the smartest choices–but are they as healthy as you think?

Find out how to plan a realistic program for overall wellness and immune system enhancement. Progress in ME/CFS: Slow and Steady Wins the Race – Lucinda Bateman MD Dr. Bateman will discuss the status of the suggested name change from ME/CFS to SEID (Systemic Exertion Intolerance Disease). She will discuss some of the achieved and hoped for outcomes from ongoing research she is involved in. Lastly she will discuss two clinical strategies, Low Dose Naltrexone and treatment for Orthostatic Intolerance which she is finding useful in her practice

NOTE: These presentations will be recorded and all registrants will be given access to the recordings. All registrants will also receive access to the presentations (video recordings) from last year’s International Awareness Day 2014 presentations by Dr. Craig Young, Staci Stevens, and Dr. Jarred Younger.


Changes to Manual Sales

We have sold out of the Binder format manuals and have decided not to restock.

From now on all orders of coil bound manuals (black & white and color) will include a bonus CD containing all the data in the manual. The CD allows readers to immediately jump to hyperlinks where they can access the recommended resources.

Thanks for the ongoing sales. Manuals are going out around the world!


2014 Calgary IADE Event Recordings Now Available

2014 Calgary International Awareness Day Educational Event for ME/CFS, FM and MCS Recordings Now Available on New Website

For more information and to register for this new site go to: http://selfconnection.kajabi.com/sp/29896-international-awareness-day-for-me-cfs-fm-mcs

On May 4, 2014 the second annual Calgary International  Awareness Day Event was held in collaboration with Self Connection Books, an independent bookseller in Calgary that specializes in health and self help books.  The event was was well attended in person and online.  There were 3 excellent speakers and all the talks, slides and online interactions were recorded.  Scroll down to the May entry on this page for details of the speakers: Craig Young, Biological Dentist; Staci Stevens Exercise Physiologist and Jarred Younger, Pain Researcher. 

Now all of the content from the event is available on the new Self Connection Books Education Resource Centre Web Site.  Those who participated on May 4th will receive an email with a coupon code that enable entry the new website free of charge.  For those registering for the first time there is a $10 charge which will give you ongoing access to this site even as new material is added.  After paying you will receive an email with a password that will enable access whenever you wish.


International Awareness Day Pictures

International Awareness Day
Calgary, Canada

Here are the pictures of the Langevin Bridge in Calgary lit to celebrate 2014 International Awareness Day for ME/CFS, FM and MCS.  Blue represents ME/CFS, purple Fibromyalgia and green MCS. The pictures were taken by local photographer Justin Smith. THANKS Justin.

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You can see more of Justin’s work at: https://jsphoto.co/


International Awareness Day Event – May 4, 2013

Due to the positive feedback from last year’s event at Self Connection Books in Calgary we are holding another afternoon of education and fellowship at the book store.

You may join this event in person at Self Connection Books in Calgary or be webcast. Those joining by webcast will be able to hear and see the speakers, view their slides and ask questions in real time. There will be three speakers each presenting for 40 – 45 minutes.

Craig Young, Biological Dentist will explore the intimate relationship of the mouth and body including wellness, disease, prevention, diet, nutrition and lifestyle. He will discuss the links between ME/CFS, FM, arthritis, Alzheimer’s, cancer, diabetes, and oral health and more! Heavy metal toxicity will also be explored. Dr. Young’s website is under development http://orijin.ca/

Staci Stevens, Exercise Physiologist at the Work Well Foundation and IACFS/ME board member. She will talk about exercise testing and how to exercise safely. Staci spoke at the 2008 Calgary Conference and is back by popular demand. Ms. Stevens will join us by web connection. Her website is: http://www.workwellfoundation.org/

Jarred Younger, Pain Researcher is an Assistant Professor of Pain Management at the Stanford University School of Medicine. Dr. Younger directs the Adult and Pediatric Pain Lab at Stanford, and is an expert on fibromyalgia. He will be discussing advances in our understanding of fibromyalgia, and treatments for the disorder that may become available in the next few years. He will speak by web connection. Dr. Younger has since moved to the University of Alabama. 

For information on his new research program click here.

Registration is a flat fee of $10.00 + GST for all participants.

You may register on line at: http://www.selfconnection.ca/index.php?option=com_content&view=article&id=877 or through Dr. Stein’s office: by Email: espc@eleanorsteinmd.ca Phone: 403 287-9941 or Fax: 403 287-9958


Highlights from the IACFS/ME meeting available online

At the end of each IACFS/ME conference is has become a tradition that Dr. Anthony Komaroff a professor at Harvard gives a summary of the highlights of the conference. This year’s presentation was particularly good and has been recorded.

Click here to listen to the audio of Dr. Komaroff’s 47 minute talk and view the slides (synched to audio).


Mom Needs to Lie Down available for viewing on YouTube

“Mom Needs to Lie Down” is an 11 minute short film by Winnipeg film maker Taylor Leslie-Cole. The film premiered in Winnipeg last night to a full house at the “Free Press Café”.

The showing was followed by a Q&A with myself, Mindy Campbell ND and Lorilee Leslie-Cole who featured in the film and is the mother of the film maker.

Taylor’s next project is to make a short 2 – 3 minute version of the film with subtitles that can be shown in medical waiting rooms across Canada to raise awareness of ME/CFS.

Click here to view “Mom Needs to Lie Down”. Taylor can also be reached directly through her email: taylesliecole@gmail.com

Click here to view Taylor Cole and Mindy Campbell ND on Winnipeg Breakfast Television from March 2, 2014.


February 9th 2014 Sleep Talks posted on YouTube

February 9th, 2014 was a wonderful, informative afternoon on sleep from three experts in different disciplines.

Calgary photographer and videographer Neil Speers videotaped the event and created three videos, one for each speaker. 

Please check out Neil’s website and if you like the videos send him a thank you. He volunteered his time ! http://www.albertaportrait.com/

Maureen McQuarrie, the editor of my manual sent me a wonderful summary of the three talks.  Sleep presentations feb 2014 Click here to read Maureen’s summary.

Click here to access all three talks. They are posted on YouTube.

Dr. Diana Monea is an Optometrist graduating from University of Waterloo in 1978. She manages, owns and actively works in 3 optometric practices in 2 provinces, Saskatchewan and Alberta. She consults as an independent consultant with legal firms and the Associations of Optometrists in Canada. She has been a member of the E- team since it’s origin. Dr. Monea talked about the impact of blue light on eye health and sleep. Her webpage is: http://www.eyehealthcentres.ca/calgary/eye-doctors/diana-monea.html

Click here to take a closer look at Dr. Monea’s slides.

Click here to view Dr. Monea’s presentation.  

Dr. Jerome Alonso MD is a certified sleep physician having trained at the world renowned sleep clinic at Stanford University. He is the owner/operator of Canadian Sleep Institute located across from the Foothills Medical Centre. He talked about: 1. The sleep changes he has seen in patients with ME/CFS and FM 2. When someone should consider getting a sleep study and 3. Strategies to improve sleep.

Click here to take a closer look at Dr. Alonso’s slides. He didn’t include all of his slides in this power point.

Click here to view Dr. Alonso’s presentation.

Dr. Chris Carruthers PhD, with Alberta Health Services – Knowledge Management, also offers health consulting services for those with cancer and other chronic illnesses. She has clearly seen that changing unhealthy sleep patterns can help resolve so many common symptoms you may experience. She is completely recovered from 7 years of ME/CFS, and her workbook, “Sleep Well Tonight” outlines three simple steps that can help you sleep better quickly. Dr. Carruthers shared her holistic approach to healing and gave a lot of hope to those attending. Dr. Carruther’s website is: http://www.chriscarruthers.com/

Click here to view Dr. Carruthers’ presentation.


The May 12th event will be webcast live and recorded.

Information about how to join the webcast will be posted shortly. If you want to be notified directly go to the contact us page and ask to join the newsletter list.

I am very excited to partner with Self Connection Books for this landmark event. May 12th is celebrated all over the world by patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivity and their supporters. It is also a day of advocacy and awareness.

The 2013 Calgary May 12th program will for the first time in Calgary use technology to allow the best speakers to present exciting information about treatment advances by two way web link. The audience will be able to hear and interact with the speakers in real time.

Click here to see the May 12 Event Information Poster.
  May-12th-Awareness-Event-Poster.pdf (847 downloads)

Click here to read about the Speakers.
  May-12th-speaker-information.pdf (823 downloads)


New Paper Posted

Overcoming challenges in therapeutic relationships with patients with ME/CFS

This paper, 3 years in the writing is a contribution towards improving the notoriously problematic therapeutic relationships between patients with ME/CFS and health care practitioners. My patients continually tell me of problems they encounter with other practitioners (and I’m sure sometimes with myself).

Eva Stormorken a nurse and PhD candidate who runs groups for ME/CFS and myself have listened to our patients and colleagues and have highlighted the most common challenges that arise. We then formulated solutions to those challenges. Dr. Bengt Karlsson, a nursing academic, helped us find language to describe our patient centered, collaborative approach.

Like the Psychiatric Guidelines paper I wrote in 2005, we submitted this paper to several journals and it was declined by all. Likely this is in part due to it being a theoretical paper and not research based. We feel having a strong therapeutic relationship is an essential prerequisite for good clinical care.

We hope the paper will be widely read and the hypotheses tested by others. 

Click here to read the paper.


How to improve relations between patients and practitioners … New paper posted on publications page.

This paper, 3 years in the writing is a contribution towards improving the notoriously problematic therapeutic relationships between patients with ME/CFS and health care practitioners. My patients continually tell me of problems they encounter with other practitioners (and I’m sure sometimes with myself). Eva Stormorken a nurse and PhD candidate who runs groups for ME/CFS and myself have listened to our patients and colleagues and have highlighted the most common challenges that arise. We then formulated solutions to those challenges. Dr. Bengt Karlsson, a nursing academic, helped us find language to describe our patient centered, collaborative approach. Like the Psychiatric Guidelines paper I wrote in 2005, we submitted this paper to several journals and it was declined by all. Likely this is in part due to it being a theoretical paper and not research based. We feel having a strong therapeutic relationship is an essential prerequisite for good clinical care. We hope the paper will be widely read and the hypotheses tested by others. Click here to read the paper.


Letter to Editor in response to paper by Fitzcharles et al on Fibromyalgia in CMAJ

In my November 2012 newsletter I commented on the then just published Canadian Guidelines for the Diagnosis and Management of Fibromyalgia. Canadian FM Guidelines On May 6th 2013 the same group that wrote the Canadian Guidelines for Diagnosis and Treatment of Fibromyalgia wrote a summary paper in the CMAJ (Canadian Medical Association Journal). This paper did not have the same tone as the original guidelines and I wrote a letter to the editor with some concerns which was published on line on May 13th 2013. Although the May 6th paper is behind a paywall, the letters to the editor (mine and the reply from Dr. Fitzcharles) are available by clicking here.


Dr. Bateman’s summary slide posted

On May 12th, 2013 Dr. Lucinda Bateman presented a slide that summarized her view of the body systems involved in ME/CFS. There was high request for a copy of the slide and she has generously agreed to share it.

Click here for Dr. Lucinda Bateman’s systems slide from her May 12th presentation.


Calgary May 12 Webcast is posted

The first presentation is by Janet Sperling MSc, Lyme researcher and CanLyme board member. Janet lives in Edmonton, Alberta. She spoke on the BC Complex Chronic Disease Clinic and on testing for Lyme in Alberta. She also presented some of her own research showing the mindnumbing complexity of tick ecosystems.

Click Here to view Janet’s presentation which is 30 minutes including Q&A. The first minute or so of Janet’s talk occurred before we pushed the record button. The next presentation is by Andreas Kogelnik, Founder of the Open Medicine Institute and Infectious Disease specialist in Mountain View California. He talked about the Open Medicine Institute concept. The last part of Dr. Kogelnik’s talk was cut off due to a lost internet connection.

Click here to view Andreas’ talk which is about 25 minutes. There is no Q&A due to the lost connection. The third talk was by Lucinda Bateman MD an internist, ME/CFS and FM clinician in Salt Lake City Utah. She presented the research of Alan and Kathy Light, her collaborators from the University of Utah and a comprehensive yet elegant clinical approach to ME/CFS.

Click here to watch Dr. Bateman’s talk which including Q&A is approximately 1 hour.


Fibromyalgia in CMAJ

Letter to Editor in response to paper by Fitzcharles et al on Fibromyalgia in CMAJ

In my November 2012 newsletter I commented on the then just published Canadian Guidelines for the Diagnosis and Management of Fibromyalgia. Canadian FM Guidelines

On May 6th 2013 the same group that wrote the Canadian Guidelines for Diagnosis and Treatment of Fibromyalgia wrote a summary paper in the CMAJ (Canadian Medical Association Journal). This paper did not have the same tone as the original guidelines and I wrote a letter to the editor with some concerns which was published on line on May 13th 2013. Although the May 6th paper is behind a paywall, the letters to the editor (mine and the reply from Dr. Fitzcharles) are available by clicking here.


International Awareness Day Calgary

May 12th International Awareness Day Calgary Event speaker videos posted

The first presentation is by Janet Sperling MSc, Lyme researcher and CanLyme board member. Janet lives in Edmonton, Alberta. She spoke on the BC Complex Chronic Disease Clinic and on testing for Lyme in Alberta. She also presented some of her own research showing the mindnumbing complexity of tick ecosystems.

Click Here to view Janet’s presentation which is 30 minutes including Q&A. The first minute or so of Janet’s talk occurred before we pushed the record button. The next presentation is by Andreas Kogelnik, Founder of the Open Medicine Institute and Infectious Disease specialist in Mountain View California. He talked about the Open Medicine Institute concept. The last part of Dr. Kogelnik’s talk was cut off due to a lost internet connection.

Click here to view Andreas’ talk which is about 25 minutes. There is no Q&A due to the lost connection. The third talk was by Lucinda Bateman MD an internist, ME/CFS and FM clinician in Salt Lake City Utah. She presented the research of Alan and Kathy Light, her collaborators from the University of Utah and a comprehensive yet elegant clinical approach to ME/CFS.

Click here to watch Dr. Bateman’s talk which including Q&A is approximately 1 hour.


3 Part Video interview: Dr. Eleanor Stein is interviewed by Jerre Paquette

Jerre Paquette is a retired associate professor, award-winning teacher, author of Eat to Save Your Life, and public speaker. His website can be found at: http://www.eattosaveyourlife.com/

Jerre interviewed me about ME/CFS: what it is? who get it? how it is diagnosed? what can people do to manage their illness? and why I am hopeful that things are getting better in Canada.

The interview is in three parts and is aimed at the general public, not necessarily people who are highly educated about ME/CFS.

Please pass the website address to anyone you think might be interested.

Each of the three parts is approximately 15 minutes long. Here are the videos:


Eleanor Stein is interviewed by Jerre Paquette

Three Part Video interview: Dr. Jerre Paquette is a retired associate professor, award-winning teacher, author of “Eat to Save Your Life”, and public speaker. His website can be found at: http://www.eattosaveyourlife.com/

Jerre interviewed me about ME/CFS: what it is? who gets it? how it is diagnosed? what can people do to manage their illness? and why I am hopeful that things are getting better in Canada.

The interview is in three parts and is aimed at the general public, not necessarily people who are highly educated about ME/CFS. Please pass the website address to anyone you think might be interested.

Each of the three parts is approximately 15 minutes long. Here are the videos: 


MAY 12th WEBCAST INSTRUCTIONS

Here are the instructions to join our Calgary ME/FM/MCS International Awareness Day Speaker Event: I recommend going to both of the links below to ensure you are familiar with the site and have the computer capacity to participate. To join the meeting and get into the webinar room, the following is the link. When the login page comes up, select Guest and then enter your name in the space provided. :http://prowebinars.adobeconnect.com/r19eynpq2ys/ You can test your computer’s setup by using the following link: http://prowebinars.adobeconnect.com/common/help/en/support/meeting_test.htm  When I did this, I was prompted to download an add in.


NEW PRESENTATION added to the Publication page.

I recently presented a paper Somatic Symptom Disorders in DSM-5: A step forward or a fall back? Presented at the Alberta Psychiatric Association March, 2013 Banff, Alberta about the newly proposed category in the DSM-5 called Somatic Symptom Disorder. I have posted the slides from my powerpoint presentation in the Presentation section of the Publications page (scroll about 2/3 of the way down, it’s the first item in this category). A big thank you to Suzy Chapman, a patient advocate from the UK, who provided me with many of the papers and background information I needed for this paper. Click on the link to view. By posting this presentation I am giving permission to use or quote the slides for other presentations. If you do so, please quote accurately and acknowledge the source. To access the powerpoint presentation click on the following link: SSD in DSM-5 Powerpoint Presentation  


Somatic Symptom Disorder in DSM-5

NEW PRESENTATION added to the Publication page… Somatic Symptom Disorder in DSM-5

I recently presented a paper Somatic Symptom Disorders in DSM-5: A step forward or a fall back? Presented at the Alberta Psychiatric Association March, 2013 (Banff, Alberta) about the newly proposed category in the DSM-5 called Somatic Symptom Disorder.

I have posted the slides from my PowerPoint presentation in the “Invited Addresses” section of my Publications page (scroll about 2/3 of the way down, it’s the first item in this category).

A big thank you to Suzy Chapman, a patient advocate from the UK, who provided me with many of the papers and background information I needed for this paper. Click on the link to view.

By posting this presentation I am giving permission to use or quote the slides for other presentations. If you do so, please quote accurately and acknowledge the source.

To access the powerpoint presentation click on the following link: SSD in DSM-5 Powerpoint Presentation


NEW Publication added to the Publication page

A paper I wrote was recently pubished in the Psychiatric Times. The topic is how to differentiate ME/CFS and FM from common psychiatric disorders.

To access the article click on the link below an when you get to the Psychiatric Times webpage you must register which is free – . Stein E., Identifying and Treating Common Psychiatric Conditions Comorbid with Myalgic Encephalomyelitis and/or Fibromyalgia. Psychiatric Times. January 18 2013 30:1. Go to article